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General Discussion on any topic relating to CPAP and/or Sleep Apnea.

koolkathy
 

Re: Newbie would like to hear success stories, please.

Postby koolkathy on Fri Oct 30, 2009 9:16 pm

I didn't notice instant relief, probably because I never knew there was a problem. My husband was the one who informed me that I snored loudly and frequently all night, every night. I did notice, after I found a mask that works fairly well for me, I am no longer drowsy every afternoon, nor do I wake with a mild headache any longer. I used to not be able to function unless I took a nap every day. I would fall asleep watching tv just about every night, not so now.

tomandlu
 
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Joined: Tue Oct 13, 2009 5:23 pm
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Re: Newbie would like to hear success stories, please.

Postby tomandlu on Sun Nov 01, 2009 9:16 am

I am sorry the 'good response' has been delayed for you. I've been on an APAP since mid June this year, and from the very first morning I've felt a HUGE change. I am still amazed. I feel better physically and emotionally than I have felt in 15 years. It took a couple of weeks to get used to sleeping with it, and I still have an awful crick in my neck that no matter how I drape the hose I still get... but over all the change for me is dramatic. My DH says the same thing, and says I no longer complain constantly about how tired I am, something he really appreciates. :D ... I can drive again, I can sit somewhere for 5 minutes w/o dozing off... I am no longer hallucinating or dreaming during the day (something that happened often as I struggled to stay awake in meetings), an most importantly - I can think. I am a scientist by training and for the past few years I thought I had gotten stupid or something, because I was having the most difficult time thinking... following the argument of a collegue, thinking about the theory that would or wouldn't support it, and couldn't do it. Couldn't think my way out of a paper bag. On the physical side - I still have a lot of aches and pains in my hips and legs... but it seems like I can tolerate the pain better - it still hurts, it just doesn't disable me any more. I'm down from 40mg/day to 5mg/day on my blood pressure meds, I've lost about 20 lbs w/o trying, and my diabetes Hb1AC came in at 5.7 in August - amazing, I've never had it under such good control. I love my APAP and would not consider sleeping without it, ever. I will add though, for the past 3 weeks I have had some episodes of tiredness like I used to have... I have started adjusting the settings on my machine to see if I can't optimize them better and get back to that incredible sleep I was experiencing just a few months ago.

Hang in there... the changes you experience may be more subtle but if you have a need for a A/CPAP, in time you will get a benefit from using it. Good luck,

Luanne

ZzzzzHappy
 

Re: Newbie would like to hear success stories, please.

Postby ZzzzzHappy on Sat Nov 07, 2009 8:10 am

I knew I was better when number 1 I stopped hearing my husband complain about my snoring and 2 when my son said I seemed to have a lot more energy. It took about two months for me. It happens gradually and it's not really noticeable until you think back to how you felt before. Going to the grocery for me was such a chore. Now I don't mind at all. Running my teenage son all over creation (he's just received his permit) was taxing for me. Now I have so much more patience and get up and go. I don't feel like superwoman, but I am much more "normal" for 41 years old I think.

Getting used to the machine is a mind-set. I'm almost claustrophobic and had to make myself learn to breath normally with my nose pillow on. Thinking about something special like a good memory helps me get my breathing down to normal when I put it on. Now I can't sleep without my CPAP. I accidentally fell asleep in the recliner a few nights ago and woke up with a terribly sore throat and dry. My body is used to the moist warmth of the CPAP now.

The only problem I do have is that I live in Kentucky. The worst state for allergies and sinus problems. I do have problems keeping my nose unstuffed for the evening. I'm on three kinds of allergy/sinus meds daily and it still doesn't work. I regrettably use OTC nose spray and I do worry about what the long term effects of this will be.

I hope that was encouraging. I would do it again in a heartbeat!!!!

God Bless and best of luck.

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MsPat
 
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Re: Newbie would like to hear success stories, please.

Postby MsPat on Sun Nov 08, 2009 12:46 pm

I am a real "newbie"!! I have had my CPAP for 6 weeks. I am 73 and truly want to feel better. I don't mind the machine at all~but don't really notice that I feel better. I don't get up for BR breaks as often ~down to about 0 to 1 time a night.
But, I am discouraged that I am not feeling better during the day. Everyone tells me to be patient~BUT patience is NOT one of my virtues!!! I have been told also that it could take me perhaps 6 months to adjust to the point that I notice a difference.
My machine tells me nothing except how long I spend wearing it! I faithfully put it on when I go to bed (around 8:30) & wear it until I get up (around 5AM) But, I toss & turn ~ when I do waken, I am able to dose off again fairly quickly! But, I am still tired ALL the time.
Being on Medicare, I am limited, I think on changing machines. Do I need to request another study?? I have gained almost 10 pounds just since I went on CPAP...
HELP, please!!!

TexasTeach4
 

Re: Newbie would like to hear success stories, please.

Postby TexasTeach4 on Mon Nov 09, 2009 6:13 pm

I have been using the CPAP for about 4 years. The difference that it has made in my life is unmeasurable. I had no idea that I was having sleep problems. I went to a pulmonologist to check on my asthma. After talking with me for less than 5 minutes he said that he would bet his paycheck that I had sleep apnea. I would have bet my paycheck that he was crazy. Well, long story short he was right. My sleep study showed that my pulse ox was 84. Now on the machine it's 96. He told me that I would quit getting up to go to the bathroom several times a night. He was right . I never get up anymore. I didn't buy Tylenol or Advil for over a year after I started using the machine --- my almost daily headache was gone. Before my diagnosis, I was having trouble at school. My short term memory was shot --- couldn't do a simple math problem on the board. My principal even told me one day, "Is something wrong? You look like ^%$#." Everyone at school is amazed by the transformation. I was worried that the machine would interfere with my husband and me in the bedroom. That is soooo much better too. I'm not "too tired" anymore. My husband even likes the machine because the white noise helps him go to sleep.

To be honest, when first diagnosed I cried and fretted. It took me about 2 weeks to get used to the mask and the pressure and about 6 months to get used to the idea of being tied to a machine. I just kept plugging at it and haven't slept a night without it. After that initial adjustment period, it's been nothing but good!

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fischdream
 
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Joined: Sat Nov 14, 2009 8:34 am
Location: Texas
Gender: Female

Re: Newbie would like to hear success stories, please.

Postby fischdream on Sat Nov 14, 2009 10:29 am

I guess I'm one of the lucky ones, I had success the very first night! I am very new, first night on CPAP was Nov 3rd, last week! I started the sleep study with a small comfort gel that just covered my nose. I fell asleep fairly quick, but woke up around 1 am with my nose, lip, teeth and sinuses killing me. I called the tech to adjust it and ended up switching to the comfortgel full face. I was wide awake at this point and had a hard time going back to sleep, but when I did I slept great and did not wake until called that the study was over at 5 am. For the first time in nearly 20 years I woke up feeling good! I went home, washed the gunk out of my hair and talked hubby's ear off! I never talk first thing in the morning! I went to work and ended up working for 12 hours that day! The day before, I was exhausted by 10 am. CPAP has already changed my life! I won't say that I love the machine, I'm still adjusting to the fit and being tied down during the night, but the benefits of the therapy are already worth the discomfort! I have lost the brain fog and short term memory loss, my quick thinking and reasoning is back! My heart rate is improving and so is my arrhythmia. I am not exhausted when I get home from work or during work. The depression is all but gone! All this in only 11 days! I feel alive again! :D

ichitumi
 
Posts: 47
Joined: Mon Jun 16, 2008 12:25 am
Location: San Francisco Bay Area
Gender: Female

Re: Newbie would like to hear success stories, please.

Postby ichitumi on Mon Nov 16, 2009 9:50 pm

I've been papping since September or so last year. When I first started wearing my equipment every night, I couldn't wait to wake up and feel as refreshed as the day after I got my sleep study/titration done. Alas that didn't happen. I did not wake up all bright eyed and bushy tailed in the morning the first morning, nor the second ... third ...

I came to this forum to find out what it was that I was doing wrong. Guess I was being impatient and wanted an instant relief/cure.

I found out that because of my years of sleep deprivation, it will take my body years to catch up.

It took a long time, but fast forward a year and some later to now ... I only fall asleep at random places sometimes rather than always. I used to never be able to stay awake to enjoy my manicures, haircuts, lectures, meetings, movies, plane rides, traffic jams (yes, while I was driving) ... basically everywhere that I sit down quietly for. I'm now down to only falling asleep when I'm really tired.

Yeah, it's dangerous to have me out there pretreatment.

I'm still not all that alert, and I still claim sleeping as both a hobby as well as a talent ... but I'm getting there ...

_________________
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Dan on CPAP
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(Dan on CPAP)
 

Re: Newbie would like to hear success stories, please.

Postby Dan on CPAP on Mon Nov 16, 2009 11:41 pm

I'm on day 5 and have been 100% compliant. (if 5 days counts as compliant). However, sleep is a hit and miss with air leaking around my face mask to trying to get comfortable or stay comfortable throughout the night. I have to make this work so that I can lose the 50 pounds I gained, regain energy to help me with my daily 130 mile commute. One huge advantage thus far, is I've left my anxiety attakcs behind me (I hope for good). My docotor told me that they'd subside with getting rest, so it must be working or at least the sleep I get with the CPAP is 100% times better without it. Additionally, my wife no longer stays watch over me to ensure I'm still breathing between my loud bear sounds and silence......
- I have been cheating to some degree with drinking Kava tea before bed time, Valerian root capsules and sometimes tylenol pm. I'm still trying diffrent things (over the counter) and hope to take nothing after getting used it.
-- Q: anyone else taking sleep aids, over the counter? How long did you take them until you were comfortable without them ?

Dan on CPAP, sleepless in California

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